Table 1 The minimum dataset

For all clinics we will record

Specialist

Clinic location

For other services we will record

Location e.g. Nursing Home, Supported Accommodation, Elderly Mentally Infirm (EMI) home

Key worker details

For all participants in the registry the following information (extracted from practice or clinic notes) is recorded where possible:

Demographic details (name, date of birth, gender, marital status, first language, ethnicity, address, postcode, housing status, National Health Service number)

Carer information (name, date of birth, gender, address, postcode, relationship to person with dementia)

Practice details (name, address)

Specialist details (name, clinic details)

Cognitive status (date of most recent test and score)

Functional status (date of most recent test and score)

Behavioural/Neuropsychiatric status

Investigations (imaging and dates)

Specific dementia medication

Co-morbidity (e.g. depression, CVD, diabetes)

History of participation in trials/studies