From: Perspectives on neurological patient registries: a literature review and focus group study
Focus group participants | Neurological condition | Role | Gender | ||
---|---|---|---|---|---|
 |  | Parent/care-giver | Person living with neurological condition | F | M |
Group A | Epilepsy (4) | 9 | 0 | 7 | 2 |
(n =  9) | Hydrocephalus (1) |  |  |  |  |
 | Muscular dystrophy (1) |  |  |  |  |
 | Tourette Syndrome (3) |  |  |  |  |
Group B | Dystonia (3) | 0 | 8 | 7 | 1 |
(n =  8) | Epilepsy (3) |  |  |  |  |
 | MS (2) |  |  |  |  |
Group C | ALS (3) | 3 | 7 | 3 | 7 |
(n =  10) | Huntington’s (2) |  |  |  |  |
 | Parkinson’s (5) |  |  |  |  |
Total | 27 | 12 | 15 | 17 | 10 |