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Table 3 Focus group participants

From: Perspectives on neurological patient registries: a literature review and focus group study

Focus group participants

Neurological condition

Role

Gender

  

Parent/care-giver

Person living with neurological condition

F

M

Group A

Epilepsy (4)

9

0

7

2

(n =  9)

Hydrocephalus (1)

    
 

Muscular dystrophy (1)

    
 

Tourette Syndrome (3)

    

Group B

Dystonia (3)

0

8

7

1

(n =  8)

Epilepsy (3)

    
 

MS (2)

    

Group C

ALS (3)

3

7

3

7

(n =  10)

Huntington’s (2)

    
 

Parkinson’s (5)

    

Total

27

12

15

17

10

  1. Group A included only parents of children living with neurological conditions.