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Table 3 Focus group participants

From: Perspectives on neurological patient registries: a literature review and focus group study

Focus group participants Neurological condition Role Gender
   Parent/care-giver Person living with neurological condition F M
Group A Epilepsy (4) 9 0 7 2
(n =  9) Hydrocephalus (1)     
  Muscular dystrophy (1)     
  Tourette Syndrome (3)     
Group B Dystonia (3) 0 8 7 1
(n =  8) Epilepsy (3)     
  MS (2)     
Group C ALS (3) 3 7 3 7
(n =  10) Huntington’s (2)     
  Parkinson’s (5)     
Total 27 12 15 17 10
  1. Group A included only parents of children living with neurological conditions.