From: Perspectives on neurological patient registries: a literature review and focus group study
Focus group participants | Neurological condition | Role | Gender | ||
---|---|---|---|---|---|
Parent/care-giver | Person living with neurological condition | F | M | ||
Group A | Epilepsy (4) | 9 | 0 | 7 | 2 |
(n = 9) | Hydrocephalus (1) | ||||
Muscular dystrophy (1) | |||||
Tourette Syndrome (3) | |||||
Group B | Dystonia (3) | 0 | 8 | 7 | 1 |
(n = 8) | Epilepsy (3) | ||||
MS (2) | |||||
Group C | ALS (3) | 3 | 7 | 3 | 7 |
(n = 10) | Huntington’s (2) | ||||
Parkinson’s (5) | |||||
Total | 27 | 12 | 15 | 17 | 10 |