Table 2 Characteristics and consultation strategies among cohorts providing additional information
From: How are European birth-cohort studies engaging and consulting with young cohort members?
Region | Focus | Date of first enrolment | Size of cohort (rounded to nearest 500) | Website | Other strategies to engage participants | Consultation with cohort members/parents |
|---|---|---|---|---|---|---|
Northern Europe | Narrow | Pre 1990 | 1,000 | Yes | Photo exhibition | - |
Northern Europe | Broad | Pre 1990 | 12,000 | Yes | Package of individual health outcomes | - |
Northern Europe | Narrow | Pre 1990 | 500 | No | - | - |
Northern Europe | Narrow | Pre 1990 | 9,500 | Yes | Package of individual health outcomes | - |
Northern Europe | Narrow | Pre 1990 | 1,000 | Yes | Personal letter | Space is provided on questionnaires for feedback |
Engaging the Media | ||||||
Dissemination through meetings | ||||||
Northern Europe | Narrow | 1990-1999 | 1,200 | No | Newsletters | - |
Northern Europe | Narrow | 1990-1999 | <500 | Yes | Personal letter | Space is provided on questionnaires for feedback |
Engaging the Media | ||||||
Dissemination through meetings | ||||||
Northern Europe | Narrow | 1990-1999 | 500 | Yes | Personal letter | Space is provided on questionnaires for feedback |
Engaging the Media | ||||||
Dissemination through meetings | ||||||
Northern Europe | Narrow | 1990-1999 | 1,000 | Yes | Â | - |
Northern Europe | Narrow | 1990-1999 | 10,500 | Yes & Facebook | Newsletters | One-off informal consult |
Northern Europe | Broad | 1990-1999 | 14,000 | Yes including areas for participants & Facebook | Newsletters | Advisory group of young people |
Events | ||||||
Online forum for parents | ||||||
Northern Europe | Narrow | 1990-1999 | 1,000 | Yes | - | - |
Northern Europe | Narrow | 1990-1999 | 97,000 | Yes including pages for children | Internet Questionnaires | Provide questions/space for feedback |
Northern Europe | Broad | 1990-1999 | 3,000 | Yes | News articles & media | - |
Northern Europe | Narrow | 1990-1999 | 8,500 | Yes & Facebook | Â | One-off informal consultation used |
Northern Europe | Narrow | 1990-1999 | <500 | Under construction | Share media clippings at clinic visits | Open ended questions on survey for feedback purposes |
Northern Europe | Narrow | 2000-2009 | <500 | Yes | Personal letter | Space is provided on questionnaires for feedback |
Engaging the Media | ||||||
Dissemination through meetings | ||||||
Northern Europe | Narrow | 2000-2009 | 500 | Yes | Personal letter, media, | Space is provided on questionnaires for feedback |
Dissemination through meetings | ||||||
Northern Europe | Broad | 2000-2009 | 19,000 | Yes | Â | Not so far, but in planning |
Northern Europe | Broad | 2000-2009 | 1,000 | Yes | Newsletters | Informal parent group |
Northern Europe | Narrow | 2000-2009 | 500 | No | - | - |
Southern Europe | Narrow | 2000-2009 | 500 | No | Newsletters | - |
Parties | ||||||
Calendar | ||||||
Birthday cards | ||||||
Northern Europe | Broad | 2000-2009 | 2,000 | Yes | Newsletters | - |
Southern Europe | Broad | 2000-2009 | 7,500 | Yes & Facebook | Newsletters, Email, online questionnaires | Â |
Northern Europe | Broad | 2000-2009 | 8,000 | Yes | Yearly event | Questionnaires piloted, but this is not considered consultation. |
Northern Europe | Broad | 2000-2009 | 1,500 | Yes | Information event planned | - |
Northern Europe | Broad | 2000-2009 | 8,500 | Yes | Newsletters | Advisory Group for Young People |
Northern Europe | Broad | 2000-2009 | 11,000 | Yes | Newsletters | Advisory Group for Young People |
Eastern Europe | Narrow | 2000-2009 | 500 | No | - | - |
Northern Europe | Narrow | 2000-2009 | 3,000 | Yes including pages for children | Newsletters and media, online questionnaires used | - |
Northern Europe | Broad | 2010+ | 6,000 | Yes | Yearly event | Questionnaires piloted, but this is not considered consultation. |
Northern Europe | Broad | 2010+ | 20,000 | Yes including pages for children | - | - |