|
Apprehensive
|
‘Want to be part of this!’
|
Aims and objectives of study
|
|
Apprehensive
|
Comforted
|
Approachable
|
|
Confused
|
Feel like their views are important
|
Approachable
|
|
Curious
|
Feel wanted – take part in national study
|
Communication – telephone, email etc.
|
|
Depressed
|
Feeling safe [details about them in study are confidential]
|
Getting answer
|
|
Eager
|
Helped
|
Groovy updates
|
|
Feelings at Diagnosis
|
Hope
|
Hope
|
|
Frustrated
|
Interested
|
How will it help?
|
|
Hope
|
Intrigued
|
Inclusive
|
|
Horror
|
Making a difference
|
Info about survival
|
|
In denial
|
Open
|
Inspired
|
|
Lonely
|
Part of the future
|
Longer term
|
|
Lost
|
Positive
|
Meet people like you
|
|
Not interested
|
Secure [non-isolated]
|
Not to be alone
|
|
Not interested [in study]
|
Sense of helpfulness
|
Notice boards
|
|
Outcast
|
Supported
|
Persuasive
|
|
Over loaded
|
To be driven
|
Point of contact
|
|
Over loaded
|
To be focussed
|
Regular newsletter
|
|
Over whelmed
|
To get involved
|
Simple
|
|
Pressured
|
Want to be part of it, want to make a difference
|
Something to look forward to
|
|
Hurt
| |
Survival
|
|
Relieved [answer]
| |
User friendly
|
|
Scared
| |
Website
|
|
Shocked
| |
Welcome packs
|
|
Unknown/uncertainty
| |
What will it achieve?
|
|
Unlucky
| |
You’re not on your own
|
|
Upset
| | |
|
Why
| | |
