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BMC Medical Research Methodology

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Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

  • Maureen E. Smith1Email author,
  • Saskia C. Sanderson2, 3,
  • Kyle B. Brothers4,
  • Melanie F. Myers5,
  • Jennifer McCormick6,
  • Sharon Aufox1,
  • Martha J. Shrubsole7,
  • Nanibaá A. Garrison8,
  • Nathaniel D. Mercaldo7,
  • Jonathan S. Schildcrout7,
  • Ellen Wright Clayton7,
  • Armand H. Matheny Antommaria5,
  • Melissa Basford7,
  • Murray Brilliant9,
  • John J. Connolly10,
  • Stephanie M. Fullerton11,
  • Carol R. Horowitz2,
  • Gail P. Jarvik11,
  • Dave Kaufman12,
  • Terri Kitchner9,
  • Rongling Li12,
  • Evette J. Ludman13,
  • Catherine McCarty14,
  • Valerie McManus9,
  • Sarah Stallings7,
  • Janet L. Williams15 and
  • Ingrid A. Holm16
BMC Medical Research MethodologyBMC series – open, inclusive and trusted201616:162

https://doi.org/10.1186/s12874-016-0263-7

Received: 13 May 2016

Accepted: 11 November 2016

Published: 24 November 2016

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Open Peer Review reports

Pre-publication versions of this article and author comments to reviewers are available by contacting info@biomedcentral.com.

Original Submission
13 May 2016 Submitted Original manuscript
Author responded Author comments
Reviewed Reviewer Report
Resubmission - Version 2
Submitted Manuscript version 2
Author responded Author comments
Resubmission - Version 3
Submitted Manuscript version 3
Publishing
11 Nov 2016 Editorially accepted
24 Nov 2016 Article published 10.1186/s12874-016-0263-7

How does Open Peer Review work?

Open peer review is a system where authors know who the reviewers are, and the reviewers know who the authors are. If the manuscript is accepted, the named reviewer reports are published alongside the article. Pre-publication versions of the article and author comments to reviewers are available by contacting info@biomedcentral.com. All previous versions of the manuscript and all author responses to the reviewers are also available.

You can find further information about the peer review system here.

Authors’ Affiliations

(1)
Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University, Chicago, USA
(2)
Icahn School of Medicine at Mount Sinai, New York, USA
(3)
University College London, London, UK
(4)
University of Louisville School of Medicine, Louisville, USA
(5)
Cincinnati Children’s Hospital Medical Center, Cincinnati, USA
(6)
Penn State College of Medicine, Hershey, USA
(7)
Vanderbilt University Medical Center and Vanderbilt University, Nashville, USA
(8)
Seattle Children’s Research Institute, Seattle, USA
(9)
Marshfield Clinic Research Foundation, Marshfield, USA
(10)
The Children’s Hospital of Philadelphia, Philadelphia, USA
(11)
University of Washington, Seattle, USA
(12)
National Human Genome Research Institute, National Institutes of Health, Bethesda, USA
(13)
Group Health Research Institute, Seattle, USA
(14)
Essentia Institute of Rural Health, Duluth, USA
(15)
Geisinger Health System, Danville, USA
(16)
Boston Children’s Hospital, Harvard Medical School, Boston, USA

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