| BRASS (RA) | BrITR (IBD) |
---|
n (%) or mean ± SD |
---|
Total surveys returned | 150 (50.0)a
| 169 (63.1)a
|
Sex, female | 124 (82.7) | 103 (62.0) |
Age, years | 61.7 ± 12.2 | 42.9 ± 13.5 |
< 45 | 14 (9.3) | 103 (62.1) |
45–64 | 60 (40.0) | 44 (26.5) |
65+ | 76 (50.7) | 19 (11.4) |
Race/ethnicity |
White/non-Hispanic | 141 (94) | 157 (94.6) |
White/Hispanic | 3 (2.0) | 2 (1.2) |
Black/non-Hispanic | 3 (2.0) | 7 (4.2) |
Asian | 3 (2.0) | 1 (0.6) |
Other | 3 (2.0) | 0 (0.0) |
Highest level of education |
High school or below | 16 (10.7) | 10 (6.0) |
Some college | 16 (10.7) | 19 (11.4) |
College graduate | 62 (41.3) | 57 (34.3) |
Beyond college | 56 (37.3) | 80 (48.2) |
SIBDQb
| … | 5.3 ± 1.0 |
EuroQolb
| 0.8 ± 0.2 | … |
-
aThis percentage refers to the percent of all patients invited from a given registry. bThe Short Inflammatory Bowel Disease Questionnaire is a health-related quality of life tool measuring physical, emotional, and social status. Scoring is 1 (poor) to 7 (excellent) health-related quality of life. The EuroQol (EQ-5D Index) is a standardized instrument used to measure quality of life in five dimensions that include mobility, self-care, usual activities, pain/discomfort, and anxiety/depression. Scoring is on a 0 to 1 scale, with 0 being death and 1 being perfect health. The ellipsis (…) was used when the responses used among the different cohorts were not identical