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Table 6 BrITR specific questions regarding biospecimen collection

From: Clinical patient registry recruitment and retention: a survey of patients in two chronic disease registries

 

N (%)

At most, how often would you be willing to provide a biopsy of intestine from endoscopy?

 Every time I have endoscopy

134 (80.7)

 Every other time I have endoscopy

25 (15.1)

 Never

7 (4.2)

At most, how often would you be willing to provide a stool specimen?

 Every 2 weeks

7 (4.2)

 Every 4–6 weeks

20 (12.0)

 Every 2 months

6 (3.6)

 Every 3 months

23 (13.9)

 Every 6 months

33 (19.9)

 Every 12 months

53 (31.9)

 Never

24 (14.5)

At most, how often would you be willing to provide a urine specimen?

 Every 2 weeks

11 (6.6)

 Every 4–6 weeks

34 (20.5)

 Every 2 months

9 (5.4)

 Every 3 months

38 (22.9)

 Every 6 months

38 (22.9)

 Every 12 months

33 (19.9)

 Never

3 (1.8)