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Table 2 Participant characteristics and outcomes summaries for those alive at follow-ups

From: Factors associated with missed assessments in a 2-year longitudinal study of acute respiratory distress syndrome survivors

Follow-up Variablesa

3-Months (n = 174)

6-Months (n = 173)

12-Months (n = 156)

24-Months (n = 146)

Living at home without services, No. (%)

106 (63)

129 (75)

123 (80)

122 (85)

Number of dependent ADLs

0 (0, 1)

0 (0, 0)

0 (0, 0)

0 (0, 0)

Dependent in any ADLs, No. (%)

55 (33)

40 (23)

35 (23)

30 (21)

Number of dependent IADLs

3 (0, 6)

2 (0, 5)

1 (0, 4)

1 (0, 4)

Dependent in ≥2 IADLs, No. (%)

111 (66)

93 (54)

68 (44)

66 (46)

Shortness of breath, No. (%)

57 (36)

59 (36)

53 (36)

49 (35)

HHIA-S Score

0 (0, 4)

0 (0, 2)

0 (0, 4)

0 (0, 8)

Unemployed due to health, No. (%)

91 (54)

88 (51)

81 (53)

68 (47)

EQ-5D Visual Analogue Scale

70 (50, 80)

70 (50, 80)

70 (50, 83)

70 (50, 90)

EQ-5D utility score

0.76 (0.40, 0.83)

0.76 (0.47, 0.84)

0.78 (0.60, 0.84)

0.79 (0.58, 0.84)

SF-36 PCS

34 (28, 43)

36 (28, 46)

41 (31, 49)

41 (34, 51)

SF-36 MCS

48 (35, 56)

50 (39, 59)

50 (37, 59)

49 (38, 57)

HADS Anxiety Score

6 (3, 9)

5 (2, 9)

6 (2, 9)

6 (2, 10)

HADS Anxiety Score ≥ 8, No. (%)

58 (38)

52 (32)

50 (35)

55 (40)

HADS Depression Score

5 (3, 8)

5 (2, 8)

4 (2, 7)

4 (1, 9)

HADS Depression Score ≥ 8, No. (%)

40 (26)

41 (25)

34 (24)

44 (32)

IES-R Total Score

0.9 (0.4, 1.6)

0.7 (0.1, 1.4)

0.6 (0.2, 1.5)

0.7 (0.2, 1.5)

IES-R Total Score ≥ 1.6, No. (%)

36 (24)

31 (19)

31 (22)

31 (23)

6-min Walk Test, % Predicted

51 (31, 66)

58 (42, 71)

63 (45, 73)

66 (42, 81)

MMT strength score

53 (49, 58)

54 (50, 58)

56 (52, 59)

57 (52, 60)

Grip, % predicted

65 (51, 85)

73 (60, 91)

80 (64, 100)

83 (67, 99)

MIP, % predicted

74 (59, 93)

75 (56, 103)

85 (61, 110)

95 (64, 118)

  1. Abbreviations: ADL Activities of daily living, EQ-5D European quality of life index, IADL instrumental activities of daily living, IES-R Impact of event scale-revised, HADS Hospital anxiety and depression score, HHIA-S Hearing handicap inventory for adults-screening, IES-R Impact of event scale-revised, ICU Intensive care unit, LOS Length of stay, SF-36 Short-form 36 functional assessment, MCS Mental component score, MIP Maximal inspiratory pressure, MMT Manual muscle testing, PCS Physical component score, VAS Visual analog scale
  2. aData are presented as median (interquartile range), unless stated otherwise. Missing data at 3, 6, 12, and 24 months, respectively (includes missing due to contraindication, unrelated to participant factors, and partially completed assessments that could not be scored): Patient Location 5, 1, 2, 2; ADLs 5, 1, 1, 2; IADLS 5, 1, 1, 2; Shortness of Breath 14, 8, 8, 5; HHIA-S 20, 13, 14, 12; Unemployment 5, 1, 2, 2; EQ-5D 15, 8, 8, 9; SF-36 20, 9, 10, 9; HADS 22, 12, 14, 10; IES-R 23, 13, 15, 11; 6-Minute Walk 61, 49, 37, 31; MMT 42, 31, 26, 16; Grip 46, 33, 27, 17; MIP 59, 44, 34, 19