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Table 5 Resources Utilized per Patient Engagement Method

From: The power of the group: comparison of interviews and group concept mapping for identifying patient-important outcomes of care

 

Interviewsb (one setting)

GCM Brainstorming (one iteration)

GCMc (one iteration)

Patient time (hours/person)

Travel

0

1

2

Participation

1

2

6

Total hours

1

3

8

Research team timea (hours/team)

Training

20

3

11

Patient recruitment

66

59

59

Travel

60

6

12

Conducting method

38

8

18

Analysis

133

2

4

Total hours

295

78

104

Variable Costs

Patient incentives

$750

$1200

$3000

 

Transcription

$1000

n/a

n/a

Fixed Costs

Data Analysis Software

$1380

n/a

$2000

 

Total cost

3130

1200

5000

Qualities about data collected

Type of data collected

List of PIOs with detailed patient perspective/context

List of PIOs without context

List of PIOs without context though sorted into overarching themes

Minimum personnel needed

Investigator & Patient Advocate

Investigator & Patient Advocate

Investigator, RA, Patient Advocate

Resources for Analysis

Qualitative Analysis Software

Patient Advisory Board

Concept Mapping Software

Level of burden

Low on patient, high on researchers

Low on patient and researchers

High on patient, medium on researchers

  1. aResearch team of 3 people, b30 interviews in one setting, c24 participants in one iteration