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Table 2 Principles of effective involvement agreed by service users

From: A co-produced method to involve service users in research: the SUCCESS model

Service users said that effective involvement should: • Follow values and ways of working chosen by service users
• Exhibit a culture which is inclusive and equally values the contributions of all participants including service users and researchers
• Be well resourced (including travel and carer costs, support, training)
• Be accessible (including venue, location, language, information, format)
• Ensure mutual communication and feedback
• Provide clarity about roles and responsibilities
• Be a process which is relevant to all involved