Characteristics | All UK EQUAL participants (n = 506a) | Alive and invited to EFU (n = 238a) | Consented to EFU (n = 113a) | Did not consent to EFU (n = 125) | Responded to EFU (n = 60a) | Did not respond to EFU (n = 41a) | Died before EFU survey (n = 12) |
---|---|---|---|---|---|---|---|
Age, median (IQR) years | 76.7 (70.8–81.7) | 74.7 (69.0–80.4) | 75.1 (68.9–80.5) | 74.3 (70.0–79.8) | 73.2 (68.2–79.7) | 77.0 (70.5–81.1) | 76.6 (71.0–82.5) |
Sex, n (%) | |||||||
Male | 312 (62) | 154 (65) | 75 (66) | 79 (63) | 35 (58) | 29 (71) | 11 (92) |
Female | 192 (38) | 82 (35) | 36 (32) | 46 (37) | 24 (40) | 11 (27) | 1 (8) |
Ethnicity, n (%) | |||||||
White | 459 (91) | 215 (90) | 107 (95) | 108 (86) | 57 (95) | 38 (93) | 12 (100) |
Black: Caribbean | 10 (2) | 3 (1) | 1 (1) | 2 (2) | 0 | 1 (2) | 0 |
Black: African | 24 (5) | 12 (5) | 2 (2) | 10 (8) | 1 (2) | 1 (2) | 0 |
Black: (other) | 5 (1) | 4 (2) | 0 | 4 (3) | 0 | 0 | 0 |
Asian: Chinese | 6 (1) | 2 (1) | 1 (1) | 1 (1) | 1 (2) | 0 | 0 |
Marital status, n (%) | |||||||
Married/ living together | 205 (41) | 116 (49) | 64 (57) | 52 (42) | 34 (57) | 23 (56) | 7 (58) |
Divorced/ separated | 29 (6) | 17 (7) | 9 (8) | 8 (6) | 7 (12) | 0 | 2 (17) |
Widowed/ partner has died | 90 (18) | 43 (18) | 17 (15) | 26 (21) | 9 (15) | 6 (15) | 2 (16) |
Never married/ lived with partner | 21 (4) | 9 (4) | 6 (5) | 3 (2) | 2 (3) | 3 (7) | 1 (8) |
Blank | 159 (31) | 51 (21) | 15 (13) | 36 (29) | 7 (12) | 8 (20) | 0 |
Educational Class, n (%) | |||||||
Primary school | 154 (30) | 84 (35) | 40 (35) | 43 (34) | 19 (32) | 18 (44) | 3 (25) |
Secondary school or vocational course | 137 (27) | 78 (33) | 46 (41) | 32 (26) | 26 (43) | 12 (29) | 8 (67) |
University degree | 34 (7) | 15 (6.5) | 8 (7) | 7 (6) | 6 (10) | 2 (5) | 0 |
Other | 3 (1) | 1 (0.5) | 1 (1) | 0 | 0 | 1 (2) | 0 |
Unanswered | 176 (35) | 59 (25) | 16 (14) | 43 (34) | 8 (13) | 7 (17) | 1 (8) |
BMI (kg/m2), mean ± SD | 29.2 (23.6–34.8) | 29.4 (23.7–35.1) | 29.5 (23.6–35.4) | 29.2 (23.8–34.7) | 30.2 (23.4–37.0) | 29.4 (24.3–34.4) | 27.0 (23.2–30.9) |
eGFR, median (IQR) | 18.7 (16.5–19.9) | 19.0 (17.0–20.0) | 19.0 (17.0–20.0) | 19.0 (17.0–20.0) | 18.8 (17.0–20.0) | 19.0 (16.9–20.0) | 18.8 (15.0–20.0) |
PRD, n (%) | |||||||
Glomerular disease | 34 (7) | 15 (6) | 11 (10) | 4 (3) | 9 (15) | 2 (5) | 0 |
Tubulo-interstitial disease | 49 (10) | 31 (13) | 16 (14) | 15 (12) | 10 (17) | 5 (12) | 1 (8) |
Systemic disease affecting the kidney | 21 (4) | 10 (4) | 5 (4) | 5 (4) | 2 (3) | 2 (5) | 1 (8) |
Diabetes | 99 (20) | 44 (18) | 19 (17) | 25 (20) | 8 (13) | 10 (24) | 1 (8) |
Hypertension | 68 (13) | 35 (15) | 15 (13) | 20 (16) | 9 (15) | 4 (10) | 2 (17) |
Familial/ hereditary nephropathies | 12 (2) | 6 (3) | 2 (2) | 4 (3) | 1 (2) | 1 (2) | 0 |
Miscellaneous renal disorders | 104 (21) | 45 (19) | 21 (19) | 24 (19) | 8 (13) | 9 (22) | 4 (33) |
Unknown/ missing | 117 (23) | 50 (21) | 22 (19) | 28 (22) | 12 (20) | 7 (17) | 3 (25) |
Years since diagnosis, median (IQR) | 3.0 (1.0–6.0) | 2 (1–6) | 2.0 (1.0–6.0) | 3.0 (1.0–7.5) | 2.5 (1.0–6.0) | 2.0 (1.0–4.3) | 2.5 (1.0–4.3) |
Co-morbidities, n (%) | |||||||
Diabetes | 193 (38) | 81 (34) | 31 (27) | 50 (40) | 14 (23) | 14 (34) | 3 (25) |
Hypertension | 386 (76) | 179 (75) | 81 (72) | 98 (78) | 40 (67) | 30 (73) | 11 (92) |
History of Major Vascular Event | 194 (38) | 83 (35) | 28 (25) | 55 (44) | 12 (20) | 12 (29) | 4 (33) |
Malignancy | 110 (22) | 45 (19) | 20 (18) | 25 (20) | 10 (17) | 8 (20) | 2 (17) |
Blank | 15 (3) | 5 (2) | 4 (4) | 1 (1) | 3 (5) | 1 (2) | 0 |
Charlson Index, mean ± SD | 7.0 (5.2–8.8) | 6.63 (4.91–8.36) | 6.4 (4.7–8.0) | 6.9 (5.1–8.6) | 6.1 (4.4–7.8) | 6.6 (5.0–8.2) | 6.8 (4.9–8.6) |