Table 2 Quotes from patient advisors

Overall Experience

a.Access to information needed to answer the assessment

4.1a “I don’t think there's anything that I didn’t have an answer to” Participant 1

b. content

4.1 b “Many of the items just did not seem relevant to me”. Participant 2

4.2b “And I think you just kind of, push it to the back of your mind and continue on your normal daily activity as much as you can so that too t the questionnaire made you stop and think, oh, yeah, right. So, I did find it helpful.” Participant 3

4.3 b “I just know I did it online and everything was clear to me so I just answered it the best I could”. Participant 2

4.4 b “I can't really think of anything that could have made it better” Participant 4

4.5 b “Oh, I mean it was good. You know, it was totally understandable and it was easy to go through and – yeah.” Participant 4

c. length of the package

4. 1c “I didn't find it that overwhelming, that I thought it was really quite easy and straightforward so I didn’t – I can't think of anything that really shouldn’t be missing” Participant 3

Problems with the questionnaire

a. Relevance of questions

5.1a “I don't understand the connection but I'm sure somebody does. There are smart people out there I'm sure they understand the connection.” Participant 5

5.2a “You can't quantify like you can't give a hard number for some of the information that you're looking for if it is more perception.” Participant 1

5.3 a “I think they struck the right tone in terms of the information that you're trying to get and how they asked the questions.” Participant 1

5.4 a “we don’t have in the questions in front of me now. It’s a little difficult to answer that but I would say for the most part I don’t think there's any area that you can eliminate. “Participant 1

b Missing domains

5.1 b “The trust in your primary care like my original doctor, you know, and I had a harder time finding a new doctor. I saw one first and yeah, I didn't really care for her. So, anyhow I found this guy and he is better but I think time will tell. I’ve only seen him a couple of times so I think in time it’ll tell and you know, how much more comfortable you can be.” Participant 5

c. Timing of administration

5.1 c “What's happening right then, might be more relevant that things will brush off after a month you’re trying to forget about because life gets in your way but something happening during that time”. Participant 5