Characteristics | Reference level | Levels | MLE (SE) |
---|---|---|---|
Constant | - | - | -0.283 (0.432) |
Disease-related variables | |||
 Time since first diagnosis, years | 0–5 |  ≥ 6 | -0.156 (0.140) |
 Number of medical conditions | 1–2 |  ≥ 3 | -0.042 (0.247) |
 Anemia | No | Yes | -0.032 (0.184) |
 Anxiety | No | Yes | 0.138 (0.191) |
 Depression | No | Yes | -0.169 (0.200) |
 Diabetes (Type I or Type II) | No | Yes | 0.222 (0.167) |
 Heart disease | No | Yes | 0.037 (0.166) |
 Migraine | No | Yes | 0.215 (0.171) |
 Multiple sclerosis | No | Yes | 0.191 (0.222) |
 Rheumatoid arthritis | No | Yes | 0.013 (0.159) |
 Cancer | No | Lower mortality | -0.087 (0.206) |
 | No | Higher mortality | 0.126 (0.199) |
Treatment-related variables | |||
 Number of previous lines of treatment | 0–2 |  ≥ 3 | -0.304 (0.146)** |
 Affordability of current medication | I can easily afford my medications | I can afford my medications | -0.200 (0.142) |
 | I can easily afford my medications | I struggle to pay for my medications | -0.403 (0.245)* |
 Experience of treatment side effects | None | Mild | 0.097 (0.149) |
 | None | Severe | 0.024 (0.210) |
 COVID vaccine | No | Yes | -0.062 (0.152) |
 Direct experience of clinical trial | No | Yes | 0.245 (0.188) |
Health-related variables | |||
 I feel fatigued | Not at all/A little Bit | Somewhat/Quite a Bit/Very Much | -0.288 (0.165)* |
 I have had difficulty with mobility | Not at all/A little Bit | Somewhat/Quite a Bit/Very Much | -0.021 (0.178) |
 I have had pain or discomfort | Not at all/A little Bit | Somewhat/Quite a Bit/Very Much | 0.053 (0.165) |
 I have been anxious or depressed | Not at all/A little Bit | Somewhat/Quite a Bit/Very Much | 0.126 (0.170) |
 I have to limit my social activity because of my health | Not at all/A little Bit/Somewhat | Quite a Bit/Very Much | 0.372 (0.184)** |
 I have had difficulty with performing my usual activities | Not at all/A little Bit/Somewhat | Quite a Bit/Very Much | 0.042 (0.215) |
 Current QoL (Classification) | 0–7 |  ≥ 8 | 0.276 (0.222) |
 QoL vs. last year | Improve | Same/Deteriorate | 0.098 (0.149) |
 Self-perceived likelihood to live to average age a | Neutral/High | Low | 0.096 (0.184) |
 Self-perceived future quality of life | Improve | Same/Deteriorate | -0.130 (0.185) |
Sociodemographic variables | |||
 Age, years | 18–50 | 51–65 | 0.279 (0.209) |
 | 18–50 |  ≥ 66 | 0.946 (0.299)*** |
 Sex at birth | Male | Female | 0.068 (0.130) |
 Country of residence | USA | Poland | 0.218 (0.245) |
 |  | China | 0.195 (0.242) |
 Paid job | Yes | No | -0.213 (0.190) |
 Education | Other than university | University | -0.168 (0.163) |
 Living alone | Yes | No | 0.279 (0.191) |
 Looking after dependent | Yes | No | 0.094 (0.154) |
Attitudinal variables | |||
 Trust in medical researchers b | Low (1–3) | High (4–5) | -0.035 (0.186) |
 Altruism c | Low (1–3) | High (4–5) | -0.020 (0.179) |
Other variables | |||
 Survey version | Version 1 | Version 2 | 0.154 (0.124) |