Table 1 Summary questions to which more uncertainties mapped after word cloud review. Numbers represent the number of responses

What strategies can increase awareness and understanding of DCM amongst healthcare professionals and the public? Can these strategies help to improve timely diagnosis and management?

1

23

28

36

Can CSF or serum biomarkers be identified to support early diagnosis of DCM and/or predict treatment outcomes?

22

2

2

9

What is the role of electrophysiology in the assessment and diagnosis of DCM?

N/A

13

6

12

What is the impact of DCM on mental health? How can patients be best supported from this perspective?

N/A

6

3

25

What is the impact of DCM, and its specific complications, on long-term quality of life?

N/A

15

15

26