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Data collection, quality, and reporting

Section edited by Roberta Scherer

This section considers manuscripts that assess quality aspects of data collected in all types of medical research studies, including systematic reviews and meta-analyses, along with how the data are reported in published form.

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  1. Content type: Research article

    Respondent-driven sampling (RDS) is an increasingly used peer chain-recruitment method to sample “hard-to-reach” populations for whom there are no reliable sampling frames. Implementation success of RDS varies...

    Authors: Nathan John Lachowsky, Justin Tyler Sorge, Henry Fisher Raymond, Zishan Cui, Paul Sereda, Ashleigh Rich, Eric A. Roth, Robert S. Hogg and David M. Moore

    Citation: BMC Medical Research Methodology 2016 16:157

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  2. Content type: Research article

    Plasma cell dyscrasias (PCD) are a spectrum of disorders resulting from the clonal expansion of plasma cells, ranging from the pre-malignant condition monoclonal gammopathy of undetermined significance (MGUS) ...

    Authors: Krystal Bergin, Elizabeth Moore, Zoe McQuilten, Erica Wood, Bradley Augustson, Hilary Blacklock, Joy Ho, Noemi Horvath, Tracy King, John McNeil, Peter Mollee, Hang Quach, Christopher M. Reid, Brian Rosengarten, Patricia Walker and Andrew Spencer

    Citation: BMC Medical Research Methodology 2016 16:151

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  3. Content type: Research article

    Sufficiently detailed abstracts of randomized controlled trials (RCTs) are important, because readers often base their assessment of a trial solely on information in the abstract. We aimed at comparing reporti...

    Authors: Jean Joel R. Bigna, Jean Jacques N. Noubiap, Serra Lem Asangbeh, Lewis N. Um, Paule Sandra D. Sime, Elvis Temfack and Mathurin Cyrille Tejiokem

    Citation: BMC Medical Research Methodology 2016 16:138

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  4. Content type: Research article

    Population-based registries are increasingly used to recruit patient samples for research, however, they have several limitations including low consent and participation rates, and potential selection bias. To...

    Authors: Jamie Bryant, Rob Sanson-Fisher, Elizabeth Fradgley, Breanne Hobden, Alison Zucca, Frans Henskens, Andrew Searles, Brad Webb and Christopher Oldmeadow

    Citation: BMC Medical Research Methodology 2016 16:134

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  5. Content type: Research article

    Reporting adherence to intervention delivery and uptake is a detailed way of describing what was actually delivered and received, in comparison to what was intended. Measuring and reporting adherence is not routi...

    Authors: Liz Graham, Judy Wright, Rebecca Walwyn, Amy M. Russell, Louise Bryant, Amanda Farrin and Allan House

    Citation: BMC Medical Research Methodology 2016 16:132

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  6. Content type: Research article

    The objective of this study was to evaluate a pilot program that allowed Chicago field center participants of the Coronary Artery Risk Development in Young Adults (CARDIA) study to submit follow-up information...

    Authors: Kiarri N. Kershaw, Kiang Liu, David C. Goff Jr., Donald M. Lloyd-Jones, Laura J. Rasmussen-Torvik, Jared P. Reis, Pamela J. Schreiner, Daniel B. Garside and Stephen Sidney

    Citation: BMC Medical Research Methodology 2016 16:125

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  7. Content type: Research article

    Mobile technology has opened opportunities within health care and research to allow for frequent monitoring of patients. This has given rise to detailed longitudinal information and new insights concerning beh...

    Authors: Iben Axén and Lennart Bodin

    Citation: BMC Medical Research Methodology 2016 16:119

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  8. Content type: Research article

    Rapid reviews are of increasing importance within health technology assessment due to time and resource constraints. There are many rapid review methods available although there is little guidance as to the mo...

    Authors: Eva Kaltenthaler, Katy Cooper, Abdullah Pandor, Marrissa Martyn-St. James, Robin Chatters and Ruth Wong

    Citation: BMC Medical Research Methodology 2016 16:108

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  9. Content type: Research article

    Intention-to-treat (ITT) analysis is commonly recommended for use, due to its benefits on external validity, in randomized, controlled trials (RCTs). No published reports describe how ITT analysis, as well as ...

    Authors: Robert D. Beckett, Kathryn C. Loeser, Kathryn R. Bowman and Trent G. Towne

    Citation: BMC Medical Research Methodology 2016 16:106

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  10. Content type: Research article

    One of the main challenges for drug evaluation in rare diseases is the often heterogeneous course of these diseases. Traditional outcome measures may not be applicable for all patients, when they are in differ...

    Authors: Charlotte M. W. Gaasterland, Marijke C. Jansen-van der Weide, Stephanie S. Weinreich and Johanna H. van der Lee

    Citation: BMC Medical Research Methodology 2016 16:99

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  11. Content type: Research article

    The Health Care Module of the European Health Interview Survey (EHIS) is aimed to obtain comparable information on the use of inpatient and ambulatory care in all EU member states. In this study we assessed th...

    Authors: J. Van der Heyden, R. Charafeddine, D. De Bacquer, J. Tafforeau and K. Van Herck

    Citation: BMC Medical Research Methodology 2016 16:98

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  12. Content type: Research article

    Many health researchers are clinicians. Dual-role experiences are common for clinician-researchers in research involving patient-participants, even if not their own patients. To extend the existing body of lit...

    Authors: E. Jean C. Hay-Smith, Melanie Brown, Lynley Anderson and Gareth J. Treharne

    Citation: BMC Medical Research Methodology 2016 16:95

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  13. Content type: Research article

    The importance of respecting patients’ preferences when making treatment decisions is increasingly recognized. Efficiently retrieving papers from the scientific literature reporting on the presence and nature ...

    Authors: Ralph van Hoorn, Wietske Kievit, Andrew Booth, Kati Mozygemba, Kristin Bakke Lysdahl, Pietro Refolo, Dario Sacchini, Ansgar Gerhardus, Gert Jan van der Wilt and Marcia Tummers

    Citation: BMC Medical Research Methodology 2016 16:88

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  14. Content type: Research article

    Previous evaluations have documented that studies evaluating the effectiveness of therapeutic interventions are not always reported, and that those with statistically significant results are published more rap...

    Authors: Daniël A. Korevaar, Nick van Es, Aeilko H. Zwinderman, Jérémie F. Cohen and Patrick M. M. Bossuyt

    Citation: BMC Medical Research Methodology 2016 16:68

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  15. Content type: Research article

    The volume and complexity of patient data – especially in personalised medicine – is steadily increasing, both regarding clinical data and genomic profiles: Typically more than 1,000 items (e.g., laboratory va...

    Authors: Martin Dugas, Alexandra Meidt, Philipp Neuhaus, Michael Storck and Julian Varghese

    Citation: BMC Medical Research Methodology 2016 16:65

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  16. Content type: Research article

    Fatigue is the most frequent symptom reported by patients with chronic illnesses. As a subjective experience, fatigue is commonly assessed with patient-reported outcome measures (PROMs). Currently, there are m...

    Authors: Åsa Nordin, Charles Taft, Åsa Lundgren-Nilsson and Anna Dencker

    Citation: BMC Medical Research Methodology 2016 16:62

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  17. Content type: Research article

    Generic quality of life (QoL) instruments provide important measures of self-reported wellbeing that can be compared across healthy and clinical populations. The aim of this analysis is to validate the ten-ite...

    Authors: Ashley E. Muller, Svetlana Skurtveit and Thomas Clausen

    Citation: BMC Medical Research Methodology 2016 16:60

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  18. Content type: Research article

    The aim of this study was to analyze whether Cochrane plain language summaries (PLSs) adhere to the Standards for the reporting of Plain Language Summaries in new Cochrane Intervention Reviews (PLEACS).

    Authors: Antonia Jelicic Kadic, Mahir Fidahic, Milan Vujcic, Frano Saric, Ivana Propadalo, Ivana Marelja, Svjetlana Dosenovic and Livia Puljak

    Citation: BMC Medical Research Methodology 2016 16:61

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  19. Content type: Research article

    Patients presenting to the healthcare system with rotator cuff pathology do not always receive high quality care. High quality care occurs when a patient receives care that is accessible, appropriate, acceptab...

    Authors: Breda H. Eubank, Nicholas G. Mohtadi, Mark R. Lafave, J. Preston Wiley, Aaron J. Bois, Richard S. Boorman and David M. Sheps

    Citation: BMC Medical Research Methodology 2016 16:56

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  20. Content type: Research article

    The implementation of multidisciplinary stroke rehabilitation interventions is challenging, even when the intervention is evidence-based. Very little is known about the implementation of complex interventions ...

    Authors: Julie A Luker, Louise E Craig, Leanne Bennett, Fiona Ellery, Peter Langhorne, Olivia Wu and Julie Bernhardt

    Citation: BMC Medical Research Methodology 2016 16:52

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