Clinical patient registry recruitment and retention: a survey of patients in two chronic disease registries

Table 5 BRASS specific questions among subset of 52 participants who had been recently inactive

	mean ± SD
What is the reason for your missed visits? Please rank the top 3^a
Too much blood work	0.1 ± 0.5
Too many x-rays	0.2 ± 0.7
Too time consuming	0.4 ± 0.8
No longer see rheumatologist at BRASS institution	0.9 ± 1.4
Surveys are too long	0.3 ± 0.8
Other life events conflict	0.7 ± 1.1

^aTo allow for easier comparison across items and across registries, we created a score from 0 to 3, where 0 signified no ratings of an item in the top 3, and 3 signified the top rated item across all respondents. The ratings were 3 = most important, 2 = second most important, and 1 = third most important. For items not rated in the top 3, zero was assigned. Recently inactive was defined as missing 2 consecutive annual visits without dropping out

ISSN: 1471-2288