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Table 1 Focus group questions

From: Perspectives on neurological patient registries: a literature review and focus group study

1. Round-table introductions, including: Why were you interested in coming out to this focus group tonight?
2. Generally, what are your thoughts about patient registries?
3. Why might you/your family member be interested in participating in a registry?
4. What might concern you about participating in a registry?
5. What are your thoughts about this information and how it is shared (i.e., information included in a worksheet handout)?
6. What words of advice would you give to doctors and other health professionals about inviting patients to participate in a registry?
  Is there anything else you would like to say?