Table 1 Focus group questions
From: Perspectives on neurological patient registries: a literature review and focus group study
1. | Round-table introductions, including: Why were you interested in coming out to this focus group tonight? |
2. | Generally, what are your thoughts about patient registries? |
3. | Why might you/your family member be interested in participating in a registry? |
4. | What might concern you about participating in a registry? |
5. | What are your thoughts about this information and how it is shared (i.e., information included in a worksheet handout)? |
6. | What words of advice would you give to doctors and other health professionals about inviting patients to participate in a registry? |
| Â | Is there anything else you would like to say? |