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Table 1 Aboriginal Birth Cohort: strategies used to address maintenance challenges

From: Challenges and strategies for cohort retention and data collection in an indigenous population: Australian Aboriginal Birth Cohort

Aim Responding strategies
To establish project legitimacy and identity Study tag, “Clan Cohort”, logo and ID cards developed
Regular updates in local newsletters for Aboriginal child and family wellbeing services
Articles published in Aboriginal and Torres Strait Islander Health Worker Journal
Discussions on Indigenous radio stations
Institutional Indigenous reference group presentations for consultation and negotiation
Opportunistic informal discussion with Aboriginal Health Workers attending workshops and conferences in city
Bright cartoon posters with simple English posted around communities with story of the study, its findings and overall long term objectives contributing to developing a sense of history
To establish researchers profiles Continuity of the research team; cohort founder and recruiter still engaged with study, two other senior researchers for 12 years
Researchers photos attached to leaflets and posters
Cartoon posters with recognizable caricatures of the researchers posted around communities
To develop community relationships Developing community relationships with Elders, Aboriginal councils and community health clinics, through phone, mail and personal meetings
Attending community events, art shows, open days and festivals
Sending Christmas cards, thank you notes and study updates with pictures and diagrams to community councils and clinics
Use of photo albums from current and previous follow-ups
At end of community visit sending summary of de-identified community health findings to Elders, council and health clinic
To establish researcher participant relationships Cohort reference group presentations for advice on all aspects of study
Cohort participants invited to “Researcher Thank You Day “with media involved
Cartoon posters with simple English posted around communities
Study aids with large non-verbal visual component accompanied by written information sheets
Biomedical results in visual form given to cohort participants
Cross-cultural training provided to researchers
Limited field staff turnover