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Table 2 Aboriginal Birth Cohort: strategies used to address locating challenges

From: Challenges and strategies for cohort retention and data collection in an indigenous population: Australian Aboriginal Birth Cohort

Aim Responding strategies
To find participants  
Rural Key significant people identified in each large community and employed
List of cohort members thought to be in community sent to them requesting confirmation of participant presence
Urban Door to door visits yielded best results
Letter useful
To positively identify participants Multiple personal identifiers including unique hospital number, name, sex, date of birth and community residence at time of birth
Showing photograph to community members
Recording of aliases on spread sheet
Key Aboriginal community assistants employed with local knowledge of community movements
Visits to remote communities with strong kinship ties scheduled close together
To use personal images All participants sign individual consents for image photograph to be taken and for photograph to be used for promotion, publicity and tracing