Skip to main content

Table 3 Should consent be requested for data linkage?

From: Young people’s views about consenting to data linkage: findings from the PEARL qualitative study

1. Linking teenage pregnancy and state benefits

2. Linking birthweight and future health outcomes

No consent required

n = 9 (4f, 5 m)

Request consent

n = 34 (20f, 14 m)

No consent required

n = 11 (5f, 6 m)

Request consent

n = 36 (20f, 16 m)

Unclear/unsure

n = 11 (6f, 5 m)

Study should not take place

n = 1 (1f)

Unclear/unsure

n = 8 (6f, 2 m)

3. Linking mental health and criminal records

4. Linking asthma and postcodes

No consent required

n = 20 (9f, 11 m)

Request consent

n = 20 (15f, 5 m)

No consent required

n = 14 (8f, 6 m)

Request consent

n = 26 (16f, 10 m)

Unclear/unsure

n = 15 (7f, 8 m)

Unclear/unsure

n = 15 (7f, 8 m)

  1. f = female, m = male; total participants = 55
  2. Bold data are the subheadings