Table 2 Characteristics of Patients Whose Medical Charts Were Obtained for Chart Validation
Patient Characteristics | Chart Obtained (n = 109) |
|---|---|
Age, mean (SD) | 12.6 (4.97) |
Age category, n (%) | |
< 4 (infants) | 3 (2.8) |
4–11 (children) | 44 (40.4) |
12–18 (adolescents) | 47 (43.1) |
≥ 19 (adults) | 15 (13.8) |
Racea, n (%) | |
Caucasian/White | 34 (31.2) |
Black | 0 (0.0) |
Asian/Pacific Islander/native | 3 (2.8) |
Not documented | 72 (66.1) |
Ethnicitya, n (%) | |
Hispanic | 3 (2.8) |
Non-Hispanic | 15 (13.8) |
Not documented | 91 (83.5) |
Census Region, n (%) | |
Northeast | 17 (15.6) |
Midwest | 30 (27.5) |
South | 32 (29.4) |
West | 30 (27.5) |
Clinical history (claims) | |
Length of medical enrollment in years, mean (SD) | 2.8 (1.23) |
Modified pediatric CCCb, mean (SD) | 1.2 (1.25) |
Modified pediatric CCC category, n (%) | |
0 | 35 (32.1) |
1 or 2 | 58 (53.2) |
≥ 3 | 16 (14.7) |
Any pediatric CCCc, n (%) | |
Cardiovascular | 54 (49.5) |
Respiratory | 14 (12.8) |
Gastrointestinal | 10 (9.2) |
Metabolic | 4 (3.7) |
Hematologic or immunologic | 3 (2.8) |
Renal and urologic | 3 (2.8) |
Other congenital or genetic defect | 43 (39.4) |
Malignancy | 4 (3.7) |
Bone health issue, n (%) | 50 (45.9) |
Impaired growth, n (%) | 11 (10.1) |
Puberty delay, n (%) | 6 (5.5) |
Apnea, n (%) | 4 (3.7) |
Medical utilization history (claims), n (%) | |
Any hospitalization | 27 (24.8) |
Any ED visit | 38 (34.9) |
Any outpatient visit | 109 (100.0) |
PCP visits | 106 (97.2) |
Specialist visits | 109 (100.0) |
Cardiologist | 75 (68.8) |
Pulmonologist | 54 (49.5) |