Table 1 Example of GAS goal topics and scores in (fictitious) patients with mitochondrial disease
Goals | -2 score | 0 score (expected outcome level) | + 2 score |
|---|---|---|---|
Being able to cook for me and my partner | The patient cooks once a week or less | The patient cooks three times a week | The patient cooks five times a week or more |
Being able to watch a film at night without falling asleep | The patient can watch a series episode of 25 min without falling asleep | The patient can watch a series episode of 50 min without falling asleep | The patient can watch a film of 2 h without falling asleep |
Being able to dress myself independently | The patient needs help with putting on a shirt and pants | Patient can put on a shirt, but needs help with pants | The patient can dress him/herself without any help |