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Table 3 PRISM Patient-Preferred Message Concepts

From: A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment

Message Concept

Example Copy

Theme Targeted

Infographic – Study Criteria

You may qualify if: 1) you have been diagnosed with autoimmune PAP1, and: 2) are willing to travel to one of our clinical sites 3 times over a 2-year period.

Preference for high-contrast, graphic designs that summarize study eligibility criteria in easy-to-understand terms

Photographed Image – Emotional Appeal

PTEN hamartoma tumor syndrome is a genetic condition in which non-cancerous growths, called hamartomas, develop in different areas of the body. The disease is hereditary, which means it can be passed from parents to their children.

Patients want to feel emotionally connected to images they see featured in the recruitment post; use of family or group images preferred

Educational Post

People affected by PCT2 generally experience “photosensitivity,” which causes painful, blistering lesions to develop on sun-exposed areas of the skin (i.e. the hands and face).

RDCRN is NOW RECRUITING patients with PCT.

Includes more information about the rare disease that participants can easily share with friends or family to help them understand their diagnosis

  1. 1Pulmonary alveolar proteinosis
  2. 2Porphyria cutanea tarda