Table 2 Change in health-related quality of life over time and impact on concordance of results between rare and non-rare and symptom-specific tools versus the SF-36 and EQ-5D
Rare Disease | Non-rare Disease | Symptom-specific | ||||
|---|---|---|---|---|---|---|
SF-36 (n = 2) | EQ-D (n = 0) | SF-36 (n = 38) | EQ-5D (n = 27) | SF-36 (n = 42) | EQ-5D (n = 7) | |
QoL change | 2 (100%) | – | 34 (89%) | 23 (85%) | 36 (86%) | 7 (100%) |
Concordance change | 0/2 (0%) | – | 0/34 (0%) | 2/23 (9%) | 7/36 (19%) | 0/7 (0%) |