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Table 2 Study duration, number of study visits, percentage of male participants of the study, and details of recruitment and retention numbers (n.d indicates that no data was available in the published literature)

From: Barriers and facilitators for recruiting and retaining male participants into longitudinal health research: a systematic review

Author / Year

Study duration

Study status at time of publication (Rec Recruitment, Ret Retention, F Follow-up)

Number of Study visits/ contacts

% of male participants in the study

Total number of male participants recruited

Total number of male participants retained

% male participants retained

Amin et al. 2023 [38]

3 years

F

9a

50%

n = 93; parent study

n = 75; Questionnaire

n = 19; Interview

80.1% Questionnaire

16.1% Interview

Cheraghi et al. 2021 [39]

20 years

Ret & F

5

42.39%

n = 4,395

n.d#

55% > 60 years

67% 40–59 years

57% 20–39 years

Crichton et al. 2012 [57]

1 year

Rec, Ret & F

3

27%

n = 20; 18–71 years

n = 10

50%

Goldberg et al. 2006 [42]

11 years

F

11

73%

n = 8,550; 40–45 years

n = 6,277; 45–50 years

n.d*

n.d

Gourash et al. 2022 [48]

5 years

Rec, Ret & F

6

21.4%

n = 527

n.d*

n.d*

Green et al. 2018 [40]

Study launched in 2010b

Rec

3c

43.7%

n = 3,315

n = 1,172

35.4%#

Griffith Fillipo et al. 2022 [49]

13 weeks

Ret & F

3

14%

n = 19; low incentive

n = 11; high incentive

n = 30

100%

Hamberger et al. 2000 [50]

Recruitment duration: 6 years 2 months, Study duration: 16 weeks

Rec, Ret & F

16

100%

n = 534

n = 150; 25–34 years

n = 49; < 25 years

n = 76; ≥ 35 years

28% 25–34 years

9.2% < 25 years

14.2% 35 years

Irvine et al. 2017 [41]

5 months

Rec, Ret & F

96

100%

n = 69

n = 59

85.5%

Janus et al. 1997  [51]

4 years

Ret

4

50%

n = 209

n = 135

64.6%

Kannisto et al. 2017 [44]

1 year

Rec, Ret & F

24-300d

49.17%

n = 560

n = 227

41.0%e

Kelfve et al. 2017 [45]

43 years

F

7

15.2%

n = 172

n = 134f

41.4% 77–87 years

Lee et al. 2009 [61]

6 years

Rec

3

100%

n = 3,963

n = 3,369

38.7% 40–49 years

45.0% 50–59 years

43.2% 60–69 years

34.4% > 70 years

Limmroth et al. 2023 [47]

1 year

Rec, Ret & F

5

34%

n = 21

n = 21

100%

Markanday et al. 2013 [58]

10 years

Rec

3g

50.8%

n = 2,296

n = 1,540

67.1%

Méjean et al. 2014 [43]

10 years

Rec & Ret

11-120h

24.1%

n = 3,929

n = 1,531

24.1%

Oleske et al. 2007 [52]

1 year

F

5

79.3%

n = 360

n = 168

83.6% 47.1 ± 6.7 years

Olmos-Ochoa et al. 2019 [53]

6 months

Rec, Ret & F

24 or 30i

Overall Study: 93.9%

Sub Study: 83.3%

n = 260

n = 40

n.dj

n.d*

Pogue et al. 2022 [54]

2 years

Rec, Ret, F

6

25.5%

n = 324

n.dk

n.dk

Rose et al. 1976 [36]

12 years

Rec & Ret

n.dl

100%

n = 2,280

n = 2,028

88.9%

Schilling et al. 2023 [37]

1 year

Rec & Ret

12

74.02%

n = 4,371

n.d*

n.d

Snow et al. 2007 [55]

11 years

Ret & F

6

62.4%

n = 3,327

n = 2,749

82.6%

Ullman et al. 1998 [56]

16 years

Rec & Ret

4

37.6%

n = 207

n = 201

97.1%

vanWees et al. 2019 [46]

2 years

F

4

19%

n = 324

n = 206

63.6%

  1. #Odds ratio reported only for male participants retained [39] or division of age groups [59]
  2. *Data not divided between those identifying as men and those who identify as women
  3. aStudy protocol of PREVENT ADPKD [63], substudy visits not specified [38] but is assumed 2 (questionnaire, interview) in a 16 month period
  4. b[40] and study protocol [60]. Study launched reported on study website [64]
  5. cProtocol paper describes 3 Stages after recruiting a population-based cohort [60], not described in [40]
  6. dStudy contact were text messages the amount, timing and frequency of SMS text messages were decided by participant [44]
  7. eCompleters of final postal survey
  8. fLast wave (wave 5) of the study (77 – 87 years old) completers of follow-up, no male specific data given for wave 1–4 [45]
  9. gProtocol paper describes the use of census data at 1996, 2001 and 2006 [65]
  10. hYearly visits with an option to fill in a complementary questionnaire each month [43]
  11. iTwo studies were included WebMOVE and MOVE-SMI [53]
  12. jSub-study was randomly selected from WebMOVE and MOVE-SMI groups and not stratified by sex [53]
  13. kDetails only recruitment strategies [54]
  14. lDue to its longitudinal nature, it is assumed this study has more than 3 visits in the 12-year reported period. No information on number of study visits or contacts was found in Rose et al. [36] or the associated protocol [66]